Thursday, December 18, 2014

Getting everyone up to date

CURRENTS

Medical Conditions: Pancreatitis, pancreatic necrosis (part of my pancreas has died)
Major Pains: upper abdomen, back, left shoulder, headache, very short of breath
Pain Level: 2 while on pain meds, spikes of 5-8 when in need of pain meds
Diet: clear liquid only
Issues/struggles: constipation from meds, night terrors and hallucinations from meds, sleep deprivation/insomnia,
Medications: pneumonia antibiotic, tylonel for fever, dilaudid (narcotic, 2-3mg every 2 hours)
Status on Visitors: Everyone that visits has to wear a face mask. We're asking for limited visitors right now. Please text Tavis for more details and scheduling 509-833-5585
Status on Breastfeeding: After trying to pump for days and it being a major stress factor, I decided to not put so much focus and strain on breastfeeding and instead try and do re-lactation whenever off pain meds (someday). Milk had pretty much dried up so pumping sessions were very emotional and frustrating. Lincoln is taking a bottle of formula just fine and we are ok with that.
Childcare Situation: Staying wtih Grandma and Auntie (holmes house) + At Aunt Kira Baron's

hey, it's Amy. I'm not sure where to start with everything we've been through in the last week. With the rollercoaster of physical and emotional news sometimes I think is this really happening to me? Sometimes Tavis and I have a little laugh and it's a glimmer of hope that everything will eventually be ok, they will figure me out, and I will get to go home. Other times we just hug each other and cry because I'm not going to lie, this is really, really hard. My body has so many issues and coming to find out even what is the problem has been quite the ordeal. Today alone I had to have another CT scan, another MRI, and another chest X-ray. Every day is full of some good news and some bad news but today I really got a blow to my soul when they said I might be here for Christmas and that my little man can't come into my room. I feel like all that holiday joy and anticipation that has built up in me for years, looking forward to our first Christmas as a family was robbed in an instant and I completely lost it. They didn't say this was happening for sure, but even the thought of it is too hard for me to bear. I can't think about this option a single time without crying. Please pray for me with my separation from Lincoln. It's so hard, I want to see him so bad, but I must get better first because he cannot get sick.

Today is day 7. I have lots of extra liquids floating around in my insides which is causing the major pain. When I'm in pain I can't cope well because I also can't breathe well. We're also trying to figure out why I always have a fever. Our GI nurse practitioner friend Tanda summed up what the doctors told us today and put it this way "all of your symptoms are explained by your pancreatitis. Part of your pancreas has died which is called necrosis. The same thing happens when you scrape your knee and you get a scab. That scab is actually what necrosis is somewhat like only in your abdomen is moist and soupy. As your body remodels your pancreas and heals it up your symptoms will get better which is actually what is already currently happening." (My breathing has improved A LOT over the past couple days, still have a while to go though) "Pieural effusion are sympatheic reaction to the irratation of your pancreas drawing more fluid across the diaphragm putting pressure on your lungs making it difficult to breathe. the irritation of your diaphragm from the pancreas makes your phrenic nerves not want to move so you do short pant breath."

To our friends and family: Thank you so much for your prayers, thoughts, love and support. We could never fully express how truly grateful we are for you and everything you've done for us during this journey.

2 Corinthians 12:9 But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly of my weaknesses, so that the power of Christ may rest upon me.

Click here to see ways you can help. If you would like to receive updates, be sure and enter your email address on the side bar to the right of this blog where it says, "Follow Updates by Email"

No comments:

Post a Comment